Strengthening Data Sharing for Public Health: Ethics and Risk Mitigation
Successful public health data sharing during the outbreak of severe acute respiratory syndrome (SARS) in 2003 contributed to preventing the disease from becoming established. Data sharing also facilitated a robust and timely response to the 2009 influenza A (H1N1) pandemic. Conversely, purposeful withholding of public health data is part of the reason why more than two years after the identification of the novel Middle East respiratory (MERS) coronavirus, the source and origin of the virus remain unknown.
This roundtable meeting will bring together leading global health ethicists to discuss the pertinent ethical issues relating to the sharing of public health data across borders and identify principles on which to base equitable data-sharing agreements.
Attendance at this event is by invitation only.
The Strengthening Data Sharing for Public Health project was launched in October 2014 with the aim of developing guidance on how to create the right environment for public health data sharing and achieve good practice.