Past eventResearch Event

Waiting to Disappear: International Standards for the Protection of the Rights of Persons with Albinism

8 June 2017 - 5:30pm to 7:00pm

Chatham House, London


Ikponwosa Ero, UN Independent Expert on the enjoyment of human rights by persons with albinism
Jake Epelle, Founder, The Albino Foundation
Muluka Miti-Drummond, Senior Programme Lawyer, International Bar Association’s Human Rights Institute
Chair: Diane Vogel, Board of Directors, Asante Mariamu



Persons with albinism are often victims of human rights violations, particularly in sub-Saharan Africa. Since 2006, hundreds of persons with albinism have been killed or mutilated, and graves have been desecrated in order to obtain body parts to be used in witchcraft rituals.

Persons with albinism in the region also face prejudice, stigmatisation, and multiple forms of discrimination. In the vast majority of cases, violations have gone unpunished.

This event will launch the International Bar Association’s Human Rights Institute (IBAHRI) report 'Waiting to disappear’: International and Regional Standards for the Protection and Promotion of the Human Rights of Persons with Albinism. The panel will discuss international human rights laws and standards relevant for the promotion and protection of the rights of persons with albinism.

This event will be followed by an open reception.